According to a study conducted by researchers at the University of Rochester Medical Center (URMC) and Gorisano Children’s Hospital, parents of children with the most complex medical conditions are more likely to report poor or fair mental health in the community. I’m having a hard time finding help.The study was published in Pediatrics, Journal of the American Academy of Pediatrics (AAP).
The study “National Mental Health Profile of Parents of Children with Medical Complexity” examined data reported by parents from a national survey of child health and compared three groups: Medical Complexity Children’s Homes (CMC), Uncomplicated Children’s Homes Children’s homes that require special medical care and do not require special medical care.
CMC is defined as 1 percent of children with the most complex medical conditions. They tend to have multiple chronic health conditions and disabilities and frequently use medical services. Examples of CMC include patients with cerebral palsy, severe congenital heart disease, or hereditary disease. Given the important needs of these children, their parents are required to balance the treatment of their children with the responsibilities of other families.
The survey found that:
-Approximately 20% of CMC parents reported poor or fair mental health. This is more than five times the proportion of parents of children who do not have medical problems.
-In addition, 36% of CMC parents reported that they did not know where to seek help in the area when faced with difficulties. This was more than double that of parents of children without medical problems.
According to Dr. Nathaniel Bayer, MD, assistant professor and pediatric hospitalist at Gorisano Children’s Hospital in the URMC division, these findings are proactive in providing health care systems to CMC parents to serve and support resources. It shows that you should try and give priority to mental health. Leading author of pediatrics and research.
“We are affiliated with these families, so we need to make sure that we take care of our parents and children,” Bayer said. “It is our job as a pediatrician and medical team to recognize and connect with parents’ needs. To service them.”
According to Bayer, only 15% of CMC parents reported access to peer support groups that are important for families to exchange ideas and support each other. To address these gaps, hospitals need to provide peer-to-peer support groups and grow a family advisory board that supports the health and emotional health of CMC caregivers.
“Having children with this level of needs affects families in so many different ways. With the right support, these families can thrive and reach their goals,” says Bayer. Told. “Without sufficient support, these families often suffer from mental and physical demands such as constant care, financial stress, and employment problems, as well as community services that lack funding and refunds. Or you may not be able to find help from a home nurse. “
Research into CMC’s families and parents is a new area, as medical interventions have improved in the 21st century and children with complex conditions live longer. “Over the last decade, there has been a growing interest in discussing and focusing on these children and their families. More support is needed to successfully navigate complex health, education and community systems. Because it is increasingly recognized that
The study also found that families with low socio-economic status (SES) reported that they were quite isolated and unaware of how to seek help. “Families with low SES often do not have the resources to easily access services. If they lack transportation to reach the clinic or have difficulty finding local community resources. If the family is also struggling to put or store food on the table, the lights make it difficult to manage the child’s medical needs and take care of themselves. “Bayer said.
More federal and state support for CMC parents, in addition to healthcare systems that provide more peer-to-peer services-home care services and greater reimbursement to caregivers, services and access for children with disabilities Everything can help parents of CMC, according to Bayer, including expansion of the system and improved early intervention support. Behavioral health and wellness services for both children and parents should also be expanded.
Bayer said, “Mental health is a part of health. Mental health of parents and parents is a big issue that has a big impact on the health of their children. I need to help. That. “
Bayer and his research team will continue to study CMC’s parents’ mental health, family resilience, and ability to adapt to challenges. The team is currently investigating and interviewing local families at CMC in the Rochester region to investigate these topics. After studying how resilience and emotional health develop in families of children with complex medical conditions, he decided to build a family support program to study the health effects of children and caregivers. I am planning.
Additional research co-authors include Dr. Justin You, MD, University of Pittsburgh. Dr. Dennis Kuo, MD, Buffalo University; and Hongyue Wang, Ph.D., Jill Halterman, MD, MPH, and Yue Li, Ph.D. Of URMC.